Coping with a Major Mental Illness

By Robert Lundin

Like the majority of my college's graduates, life after graduation was full
of promise for me. I had had a successful and memorable three years at the
small piqtuesque Kenyon College in Ohio with a wonderful junior year spent at
Exeter University in England. Regardless of some indecision about a career
path, I wholly expected my days to be predictable, natural, and auspicious -
until I became severely mentally ill at the age of 23.

I remember the first night I went mad. An acute psychotic episode is a vivid

My thoughts became expansive, sweeping, one fantastic idea triggered another
then another. My mind was both exhilarated and terrified with frightful
revelations about life and the universe. It seemed nothing in the world
existed outside of my perception. Then as I lay beneath my covers,
perspiration beading on my brow, God was communicating with me through an
ordinary 60 watt light bulb shining through the louvered closet to my
bedroom. In reality, I was very ill.

It was November 1979, 18 months after my graduation from Kenyon. I was in
Nashville, in my second year as a graduate student at Vanderbilt University.
That night I drove to the medical school's emergency room and doggedly
insisted I talk with the university's Chancellor. I had prophetic news of a
pending nuclear attack.

Not surprisingly, the nurses didn't call the Chancellor. Instead they led me
to a brightly lighted examining room and called a psychiatry resident. I sat
uncomfortably on a examining cot refusing to talk. Why weren't they taking
me to see the Chancellor? Couldn't they detect my urgency? My importance? I
thought something had gone wrong. Actually, something had gone very right.
This was my first definitive step toward a long and painful recovery from
manic depression.

After a week in the psychiatry unit at Vanderbilt, I had begun my long
relationship with neuroleptic medications, the class of major tranquilizers,
which in the last half of the 20th century, have revolutionized the care of
the mentally ill. I take them today. The side effects are well known, such
as impaired concentration, memory loss, and, for a small unfortunate
percentage, the spasmodic churning of the mouth and tongue known as tardive

But when you can't live without these drugs, you learn to live with them.
It's a percentage game. You can only hope that tardive dyskinesia doesn't
happen to you. The odds are remote enough that you manage to have peace of
mind. As an alternative, living with the symptoms of a major mental illness
is so odious that any hope of change has to be embraced, despite its possible
mean ramifications.

Persistent and severe mental illnesses are, to the informed, neuro-biological
brain disorders; they're complex brain diseases. Here I'm talking about a
limited number of illnesses: schizophrenia, manic-depression, and clinical
depression being three. To the uninformed and ignorant - or, in the case of
the health insurance industry, the greedy - they're reason for fear, hatred,
ridicule, rejection and discrimination.

A mentally ill person has a two-fold dilemma. On the one hand he's
traumatized by faulty brain chemistry, on the other hand he's beset with its
grievous social ramifications.

Due to the stigma of mental illnesses, I said nothing about my psychiatric
breaks and my medications to anyone for a long time. I couldn't accept that
role or identity. I still disdained the mentally ill. I remember gazing
around the waiting rooms at psychiatrists' offices and wondering what kind of
kinky people sat in those chairs.

My family and I shared the dim hope that the episode at Vanderbilt was unique
and if only I pursued a less stressful career, I would get along nicely with
only a slight blemish on my record. But over time and after repeated manic
episodes there inevitably came more grief, and then acceptance.

It takes time to learn to cope. Today, seventeen years into my illness, I yet
struggle with the subtle difference between 'am I a manic-depressive?' and
'am I a man who suffers from manic-depression?' Writing and the arts help
the mentally ill cope, perhaps as an outlet for anxiety, perhaps as a vehicle
for self discovery. For people whose goals, ideals, and dignity are
uniformly squashed, there is thirst for positive recognition. (Witness the
John Hinkleys of this world whose craving for recognition goes awry.) Part
of a poem I once wrote goes:

Hand me not this madman's fate, Cried I each sorrowful day.
Poltergeists find in me of late, Fertile ground for their deceitful play.
Woe to the life of a promising man, With a promising act to follow.
Lend him thine aid, be compassionate men! And dig not his grave too shallow.

I can't really understand why, but I've always held tenacious hope for
recovery. "I'm not going to not recover," I would say to myself in a
convoluted fashion. On good days I would think how valuable this life was,
how I wanted to make something of it. I could never give-in to this illness,
I refused defeat.

But time can dampen one's spirit. As weeks blended into months and they into
years, so came despair. For years I couldn't hold a job, I had no friends, I
was still living with my parents at a time when my peers were getting
married. After being fired abruptly many times, I had begun to perceive
myself as an abject failure.

I've come to know there is an other-worldly power that watches over one
though suffering and hardship. Occasionally, and you never can predict when,
it intervenes and redirects your life with dramatic consequences. I can
think of four times during my illness when this occurred.

The first was that night in 1979 when I checked myself into the Vanderbilt
hospital. I left my apartment with absolutely no plans to go there, nor did
I even know where the hospital was. I seemed to be guided there. The second
remarkable step in my recovery happened several years later when, after a
despairing job failure, by good chance I began seeing a forward-thinking
doctor who prescribed an epileptic medication, Tegretol. It helped me
exceedingly. Thirdly, in 1985 I experienced a religious revelation that I
should never forget. Then in 1991, twelve years after I became ill, by
singular circumstances I came under the care of a physician who solved the
puzzle. He prescribed an anti-psychotic drug which, in combination with
lithium and Tegretol, brought my chemical imbalance into check.

Manic depression is incurable, but now I had the tools to manage it. Next I
needed to rebuild my life and my credibility.

Initially, I coped with mental illness very much as most people do: I denied
it. This isn't particularly healthy nor is it tenable. But sometimes life
becomes so desperate that there is little other course to take. Then, as I
started to better accept the disease, I found I could speak freely to family
and close friends about it.

In recent years I've worked harder at accepting the disease and rejecting the
stigma which accompanies it. I have continued to enlarge the circle of
friends and acquaintances, even an employer, who know I have an illness.
I've become energetically involved in mental illness advocacy with the help
of the Alliance for the Mentally Ill. AMI has given me great support and a
platform to speak on mental illness to schools, churches, civic groups, and
at local and national conventions.

The organization has done a lot for me, and I'm proud that I have contributed
to it. Today I serve on the executive committee of the Board of Directors of
AMI of Illinois; I am president of AMI of Illinois' Consumer Council
(consumer is AMI's lingo for person with mental illness), and I am an
executive committee member of the National Consumer Council.

I've also found an identity as a working person. When my illness was brought
into check, that opened up a whole frontier to me as an employable person. I
needed only find a field where I had talent and where I wouldn't be rejected
for holes in my work history. I chose freelance journalism. The business is
tough, but you're as good as your tear-sheets and you're judged on your

I work both as a reporter and photographer. When I began, I took feature
photographs around my town and meekly submitted them at night through the
mail slot at the local paper, The Glen Ellyn News. Gradually I mustered up
the courage to make myself known to them, and began to accept assignments.
With a portfolio of clippings I later submitted my work to the Chicago
Tribune where I was their freelance reporter in suburban Oak Brook. An added
highlight: the Illinois Press Association recently awarded me a state-wide
first place distinction for news photography.



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