Living in Chaos: Survival

Pinch me?

These past few days have still been good. It sounds strange, but in some ways, there is part of mestill waiting for the shoe to drop, and my world to explode again. Likely a bit of PTSD. We've been living in such chaos for so long, that peace seems alien and unreal.

Monday, both boys has an appointement with Dr Robinson. They are both doing very well. The doctor still wants me to work Dalton off the Abilify, which I began giving him again when I nix'd the Topamax, but he did give me prescriptions for all his current meds. Eskalith, Seroquel, and Abilify. his concern, is that hestates there is no evidence supporting being treated with two antipsychotic medications at the same time! I do not agree with his statement. Dalton has required Seroquel and Zyprexa for 5 years, we were able to stop the Zyprexa after almost doubling his Seroquel, but the two meds seemed to address different symptoms. Dr R did backstep to say that Seroquel and Abilify's mechanism of delivery is a bit different and may cover different symptoms.

I told the doc that I am not ready to stop Abilify yet. I explained that when I stopped the Topamax, Dalton seems to be more clear in his thinking, maybe the Topamax was sulling him a bit? However, his activity level and hypomanic stuff seemed to increase a bit... so I added the Abilify. I plan to try to stop it in another month and see what happens. At present he is on 450mg Eskalith BID, 600mg Seroquel AM, 400mg Seroquel noon & PM, and 5mg Abilify PM. Still on Synthyroid and Miralax as well.

David's meds are staying the same 100mg Clozaril am, 400mg pm, and 80mg Geodon BID, 12.5mg Thorazine PRN. Dr R noticed that this visit David was not overly angry, was more alert and clear headed. Much more open affect.

Since both boys are doing well, we scheduled 3 mos appointments.
---------------------
Tuesday, we did bloodwork for both boys.

Dalton had his first ever U/A. that was an experience! Like anything new, he got anxious, did not want to do it... I ended up taking the paraphenalia with me to collect it later. After David did his labs at the hospital we take him to, they go to different labs, Dalton decided he had to go pee. I had told him that we would not be able to go to the fireworks stand if he did not pee in the tray/cup for his test. LOL I'll use whatever I have to to motivate!

David's hospital lab is close to Gene's office, so we made a quick stop to say "Hi" to daddy, and collect the urine specimin! Parenting is fun! Then left to see Pinnochio at the free movies...

On the way home, Gene called me to tell me he was ill and had gone hom to rest... The evening found us all feeling fine, and was a pleasant time. David mowed the neighbors lawn, we played basketball, had dinner...

Peace feels funny, but I think I could get used to it!

Smiles to everyone. I hope you are having some peace in your lives.
God Bless and keep you all

There is always a light, no matter how dim, if only we seek to find it.

Posted by TwoSons at June 30, 2004 04:44 PM | TrackBack