BY LORI LEIBOVICH
Last year an estimated 2.2 million Americans went untreated for severe
mental illnesses such as schizophrenia, manic depression, obsessive-compulsive
disorder and autism. Of those, about 300,000 were either homeless or in
prison. About 4 percent of U.S. homicides are committed by the mentally
ill each year. And with cutbacks in government spending on health and
the move to managed care, the situation is likely to get worse.
In his recent book, "Out of the Shadows: Confronting America's Mental
Illness Crisis" (John Wiley & Sons, 244 pages), research psychiatrist
E. Fuller Torrey writes that the deinstitutionalization of hundreds of
thousands of mentally ill people has wreaked havoc on America's streets.
In a recommendation that is bound to stir controversy, he calls for increasing
the involuntary hospitalization of the mentally ill.
Torrey has written several books on mental health, including "Surviving
Schizophrenia." He works at the Neuroscience Center of the National
Institute of Mental Health and is a founder of the National Alliance for
the Mentally Ill, an educational and support organization for the mentally
ill and their families.
Lori Leibovich talked with Torrey about what he calls the "crisis"
of mental illness in America and a health-care system he says fails to
help its sickest patients.
Lori Leibovich: Emptying America's mental
hospitals -- "snake pits," many people called them-- and moving
towards "community care" was supposed to be a sign of progress.
But you say deinstitutionalization has failed. Why?
Dr. Torrey: It hasn't failed completely. There are lots of folks
– about 50 percent of the mentally ill population -- who have done reasonably
well since leaving the hospital, especially those who have insight into
their illness and who recognize they need medication.
Take my sister, for example. She has had schizophrenia for 30 years.
She was in a state hospital for 25 years continuously. She is now living
in a group home where the quality of her life is substantially better
than it was -- she can visit with her boyfriend in the evenings, go out
to dinner. She is an example of someone who would still be in a state
hospital if it weren't for deinstitutionalization.
The problem is with the other 50 percent who do not have insight into
their illness. They often stop taking their medications as soon as they
walk out the hospital door. These are the people who end up on the
streets, in jail or committing violent acts. We have no mechanism to get
these people back on medication.
Lori Leibovich: And for these people, you favor a return to involuntary
hospitalization and forced treatment?
Dr. Torrey: Yes. Consider the issue of Alzheimer's disease. If
Mrs. Jones with Alzheimer's wants to wander around outside without shoes
and socks on in the middle of winter, we don't say, "OK, you have
a right to do that," because that would be inhumane. And we don't
have much problem taking someone with Alzheimer's disease and putting
them on a locked ward saying, "Yes, you can go outside, but you're
going to have to go with someone so you can find your way back."
In that case, people don't say you are infringing on the patient's civil
liberties.
But in the case of the mentally ill, we say we are infringing on their
liberties, thanks to the civil liberties movement, which adopted the mentally
ill as one of their causes back in the 1960s. Civil liberties lawyers
have been very successful in changing the laws in many of the states,
making it very difficult to keep the mentally ill safe and sound, inside.
I see mentally ill women all the time who have been raped on the streets.
Civil libertarians say they don't like these women getting hurt but if
they don't want to go to the hospital then they have a right to stay on
the street.
Lori Leibovich: So you would put them away, no questions asked?
Dr. Torrey: I propose a model similar to the one Ed Koch had in
New York when he was mayor: When there is someone who is obviously mentally
disabled and living on the street, we have the right to pick them up and
put them in the hospital for 30 days, try them on medication and see if
they respond. Then an evaluation would be done.
I don't say we should have the right to do this on a doctor's signature
alone. No one wants to go back to the 1930s. The mentally ill person should
definitely have his day in court and be able to appeal these decisions.
But ultimately we should have a mechanism to involuntarily treat people
who have brain disorders, who have no insight into their illness, and
are are clearly a danger to self or others.
Lori Leibovich: Is "having their day in court" sufficient
protection for those involuntarily committed?
Dr. Torrey: In terms of checks and balances, I would involve public
defenders on this. If you have a well-run system where there are unannounced
inspections, it is possible to measure quality of life on the wards and
in outpatient systems. We haven't done this very well.
Lori Leibovich: Let's say we accepted involuntary commitment.
Would there be room in state facilities for all of them?
Dr. Torrey: No. That's why the state hospitals will never push
this, because it would mean they would have to reopen some of those hospital
beds, which would mean putting more money back into the system. When a
state closes one of their hospitals, they have then shifted the cost to
Washington. So when you ask them, "Wouldn't you like to open three
more wards to take on these people?" they look at you like you are
crazy. The states save money by discharging people. They don't save money
by providing care for them.
Lori Leibovich: You call the treatment of the mentally ill a "disgrace."
But with new medications, new technologies and an increased understanding
of the brain, shouldn't our treatment of the mentally ill be advancing?
Dr. Torrey: Yes. It should be. There are hosts of new anti-psychotic
drugs that are very effective, but they can cost $6,000 to $10,000 a year.
I run a clinic for homeless mentally ill people, and by begging the drug
companies I have gotten these medications for two of my clients, but it
was enormously complicated. I see people all the time who should have
access to these medications, but they don't.
Lori Leibovich: Is that why so many mentally ill people -- 2.2
million by your estimate -- are left untreated?
Dr. Torrey: Cost is one of the reasons. The single largest issue
is the insight issue. The majority of people wouldn't take the medication
even if you offered it them. Because they don't think there is anything
wrong with them.
Lori Leibovich: And many of them are broke and homeless.
The homeless are the most visible evidence of a failed system. Many of
them are on the streets because they were prematurely discharged from
the state hospital. Some of them don't even make it to a hospital because
the states closed so many beds. They are severely disabled, but they are
not receiving medication or outpatient treatment of any kind.
By the way, the vast majority of panhandlers are not schizophrenics,
they are substance abusers.
Lori Leibovich: You say there are large numbers of prisoners who
are mentally ill.
Dr. Torrey: In California, according to the numbers, about 20
percent of those in the prison system are severely mentally ill. Being
in a prison or jail when your brain is working normally is no bargain.
Being in there when you are hallucinating is living hell. In some states
there are separate pods or treatment facilities for the mentally ill.
In fact, there are a fair number of families who say they were unable
to get their loved one help until they got into the prison system. That's
a sad commentary on our system.
Lori Leibovich: Tipper Gore and others have said mental health
insurance should be more widely available. But is that likely in an era
of managed care?
Dr. Torrey: We can't blame what we are seeing on the streets today
on managed care. But it is definitely going to make things worse. While
now you only pass four homeless mentally ill individuals on the way to
the grocery store, five years from now you are going to pass six.
Lori Leibovich: Why can't managed care do a better job?
Dr. Torrey: HMOs can provide excellent care for the severely mentally
ill, if they want to. There is nothing inherent in the HMO model that
dictates that you can't serve the mentally ill well. The problem is with
the for-profit model. When the earnings of the top executives and the
stock price of the company are dependent on being able to save money there
is an enormous conflict of interest. People with severe mental illness
-- like people with other chronic brain disorders like Parkinson's or
multiple sclerosis -- are relatively expensive to provide care for. In
for-profit managed care, it is not surprising that they are going to fall
through the cracks most quickly.
Lori Leibovich: They don't like to pay for long-term therapy,
but they will pay for drugs.
Dr. Torrey: I don't advocate expensive long-term treatments for
everyone who is unhappy. I differ from many of my colleagues who say mental
illness should be covered just like any other physical illnesses. For
example, people who have experienced a death in the family or parents
whose teenage son won't talk to them, or the professor who doesn't get
tenure -- these are all examples of what I call "problems of living."
But brain disorders like schizophrenia should be covered equally. A major
problem now with the coverage issue is the reluctance of psychiatrists,
psychologists and psychiatric social workers to make that distinction.
Lori Leibovich: Why?
Dr. Torrey: Money. From the point of view of mental health providers,
if the insurance companies don't cover "problems of living,"
there would be an awful lot of therapists looking for other jobs.
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